Yasmin & Yaz Survivors

Joined: 26 Apr 2012 Posts: 1 : Items

Hi Everybody. Firstly, thank you so much for this forum. I have never felt so cast aside and unimportant as when I GO TO THE DOCTORS who have absolutely no knowledge of the drugs they prescribe. My story is a little long, please be patient.

I was always opposed to BCPs, however I have endometriosis which causes debilitating periods, random pains, and pain during and after sex. The symptoms became so unbearable (heavy periods that lead to blackouts, nausea, vomiting, pain level of 10 or higher, pelvic, back, and leg pain, not to mention I couldn't have sex with my boyfriend any more due to the pain.) I went to the Dr. who prescribed ortho tri lo, which I was on for a few months. It caused mood swings and a rash. I went back to discuss my symptoms, and to let her know that while the pain during my period was better, it was still painful to have sex and I had pelvic pains every day. I also informed her of a rash I was getting that I never got before being on BCPs. She told me she'd never heard of that and that I didn't have a lot of options. She offered anti-depressants which I refused.

A couple months later, I moved and began seeing a different Dr. I told her about the suspected endometriosis and about my symptoms, and she was understanding and suggested Yaz, and that I see an OB/GYN. She said that someone with endo should have as few periods as possible, because endo is endometrial tissues growing outside of the uterus that bleed and scar when you have a period. The scars get worse over time. It was about a year ago that I started taking the Yaz, but didn't have health insurance so didn't make it to the OB/GYN until about 6 months later. Everything was fine at first. Then I started having spotting that is like CHUNKS coming out that burn and itch. The cramps and back pain were mild. Later these "yaz periods" were accompanied by graphic visions of slitting my wrists, and severe anxiety which made me want to literally crawl out of my skin.

I visited an OBGYN when I finally got insurance, back in January. She did an ultrasound, said everything looks good, and that I probably do have endometriosis, however the only way to know for sure is via minor surgery (laproscopy) and that she doesn't recommend it. She said, "we can cut the scars out but they're just going to come back within six months. There is no cure for endometriosis." She mentioned that often the symptoms go away after having a baby (I don't want kids) but that fertility is an issue with endometriosis so if I WANTED to have a baby I'd have to "try like crazy." Then I started to cry, because even if I did want kids, how could you ever expect me to "try like crazy" when it hurts to have sex? She offered anti-depressants AND elavil, which I declined, and suggested I stay on the Yaz and do CONTINUOUS hormone therapy (no placebos) and maybe see a counselor. And that was that.

I am still currently on the yaz. I have been experiencing a lot of anxiety lately, and I have been getting this rash that is driving me crazy. It starts to itch and if I just touch a spot that itches I break out in long hives. I get them on my face, neck, arms, shoulders, back, ankles, and upper thighs. My scalp itches like crazy. It's been going on now for maybe a week or two regularly, and it's getting worse. I have had two periods this month.

So I need advice. I want off the yaz, but am afraid to go off it also because of the endometriosis symptoms. I know when I tell the Dr. what is going on, they're going to say they've never heard of any of my symptoms, and then offer me more drugs. I'm frustrated and I feel powerless. What do I do now?

Thanks everyone.

Posted: Thu Apr 26, 2012 1:48 pm

HI dear.

I am happy you found us! The symptoms you had that lead you to get the diagnose of endometriosis are sure no fun ones... but i do believe that they can be treated or even cured -- Naturally!

I wish I had the perfect potion for you to take. I would recommend trying Emerita Pro-Gest Progesterone cream - but it is probably not enough. If you are able to locate a Nutritional Response Testing clinic in your area that is the path I would take! They will be able to identify what supplements and natural products would be of benefit to you in your current condition. There is something that is causing this growth, that is for sure... but what is another story. The get the diagnose Endometriosis is really just to get a name for a symptom, but no cause. And that in itself is incredible frustrating!

If you cannot find a NRT clinic in your area, look for "muscle testing" or maybe a ND could help you. Going to the regular Pharma supported doctors will give you the same answers you have already gotten. "Here are more drugs for you to hide some of your other symptoms"... You know the drill...

Please keep me updated.
Welcome to the forum and many warming hugs to you.
~Helena